Why Research Ethics Requires More, Not Less, Participant Data

Lunch provided at NOON
Talk begins at 12:10 pm

The ethical conduct of research sometimes requires that investigators collect more, not less, participant data. Looking at examples of living donor uterus transplantation research and psychiatric research illustrates the importance of gathering data that can be used both in real time to improve studies and in the future to assess possible clinical applications of findings.

Ana S. Iltis, PhD is director of the Center for Bioethics, Health & Society and Professor of Philosophy at Wake Forest University. Her over 100 publications focus primarily on research ethics, including research involving children, early phase human research, mental health research, informed consent, and risk in research decision-making. Professor Iltis has been a board member of the American Society for Bioethics and Humanities. Currently she serves on several National Institutes of Health data safety monitoring boards, and co-edits the Annals of Bioethics book series (Routledge) and the journal Narrative Inquiry in Bioethics (Johns Hopkins University Press).